Bon Voyage Bertha…. an update. 

so a little birdy told me that keeping track and journaling this “journey” is therapeutic, a good way to keep friends & concerned family involved & is something to look back on when you need reminding that you’re a total and complete bad-ass.

So I shall blog. And inform all you concerned citizens about my progress and mental stability. And hopefully lex keeps it light by continuing to say things like “mommy! You can’t take me to school if you don’t have any hair!”.

I feel totally fine. Minus the (giant) gash in my chest from my mediastinoscopy (aka biopsy that I didn’t realize would result in a scar that rivals my c-section). I went to the gym this week! But I also went to two doctors appointments, got my chemo hair cut, and have my port scheduled to go in tomorrow…

I’m beyond lucky. I mean if you’re going to get stuck with a cancer might as well get a highly treatable kind. Every doctor and nurse I’ve encountered so far has been extrodinary. I mean my doctor barely flinched when I asked if I could be-dazzle my chemo fanny pack (his answer was ultimately no. But I’m sure I can win this be-dazzle fight).

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I start chemo this Monday! I march my butt to the hospital and get 5 whole inpatient days where I hopefully get to sleep in past 5am (we have an alarm clock shaped like a 2 year old that goes off at 5am every morning), and get to eat all the JELLO I want (insert jazz hands emoji).  My chemo regimen is 5 days on and 16 days off (EPOCH + R). Those 5 days are 24 hours a day of chemo- so after this first round I’ll get to do it from the comfort of my own home and continue to make sure the ladies are perfectly dressed (because priorities).

So. 6 rounds of this puts my end date being in April. APRIL. That’s so soon. That’s still spring! I won’t even have to endure this madness for more than two seasons- and that’s reason to celebrate.

since I have b-cell lymphoma AND it’s a giant mass in the middle of my chest (it’s 9cm long! Beastly thing) we decided it needed a good solid name because “cancer” is zero fun. So the nickname Bertha was born along with the hashtag bonvoyagebertha . I’m also totally throwing it a going away rager when this is all over (plus I’ll probably have some medical marijuana to use up. I plan on enjoying ALL the perks of cancer- despite what my dad says).

So that’s what I’ve got right now. a lot of hope- and a lot of not being able to plan (which is hard. . . because i’m SUCH a planner).

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i’m pretending that if my hair is shorter it’ll be lighter and i’ll keep it longer. . . and that it’ll be less of a HORRIFIC thing if shorter strands fall out. . . 

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  • Sooooo if IIIIIIII bedazzle the fanny pack, you won’t get in trouble? Totally what we’ll be doing then.

  • Gayle

    I don’t know how to bedazzle, but I can make rad Jell-O shots! You did say you love Jell-O, right?

  • Teresa

    So you get to miss running around in rain and mud. April. Spring fresh new alive. Kick Bertha’s butt

  • karra

    you better bedazzle the heck outta that fanny pack girl. + if they really don’t let ya, my mom sent me a New Kids on the Block fanny pack for Christma… you can have that 😉

  • Lisa

    Gotta love the honest mouths of kids! You’re amazing and I thank you for being raw and real in sharing your journey with this. Love you girl…I am praying.

  • Samantha Sherlock

    So in regards to enjoying all the perks of cancer… I have a friend in San Francisco who was going through chemo and on days when she was feeling great she would whip off her scarf or wig and fan herself with it to get sympathy and a seat on public transit . She said if she has to deal with the crappy side of cancer she better use all the perks while she can!

  • Beth Huff

    Bonvoyagebertha! You are amazing for sharing. Sending prayers, strength and love Erin! #luvyourpositivity!

  • Jean

    Erin you are such an inspiration…I love your photos, your humor, your new hair cut, and your writing is the best! With a winning attitude like yours and all who love and support you…omg and your girls…you are going to do great!!! Thank you for sharing your journey with all of us. Continous Love and prayers coming your way from the Hamilton/Kirkeby family!

  • I love your outlook and positivity, you are right April is so soon!!i hope this flies by for you and that the worst aspect is the hair loss. Lots of love for next week that you take the chemo in stride, and are able to enjoy the naps and jello! Love and light coming your way girl!

  • Love the new hairdo! So cute on you! Thanks for updating us all on how you are doing. Not only will this be therapeutic for you but will probably help someone going through this later on. Thinking of you!

  • Lynn Richey

    You may not remember me but I’ve known of you since you were a little girl. It always seemed time that you and your mom were inseparable and adorable. I am so sorry to hear of your diagnosis and the process you will undertaking! Your positive thoughts will be a strength to you and those who love you. I will read with interest of your journey. Know you are loved by so many….even those you didn’t know cared! Your humor will help you through this. Prayers for you!
    ❤️ Lynn Richey

  • Meghan

    Oh yes, you must take advantage of any perk this gives you… especially the marijuana! It’s gonna be one heck of a party when this is all a thing of the past come April!!! I’ll be thinking of you Monday… stay strong, you got this!

  • Friend! Firstly, you are gorgeous… that beastly mass has nothing on you. And the haircut is perfection. I love your attitude and your spirit. Can YOU be my spirit animal? So many thoughts & hugs & prayers your way. I promise to be on call for all important texts during those many chemo hours. Love you Erin!

  • Ashley B

    You don’t know me and I’m not sure I’ve ever posted, but I am a long time reader and stalker, I mean follower on all forms of social media. I didn’t think I could love you and your sweet family from a distance more and then you go and write this post. YOU ROCK. That is all.

  • Joseph Gray

    I’m praying for you, Erin. We love yo and have confidence that God has this.
    Peace be with you.

  • Desiree

    Friend, you are so strong and amazing, and I know you’re going to kick Bertha’s ass.
    Love, love, love you!!!

  • Tobey Leier

    HastalavistaBertha!!… Sending you gigantic hugs, love and prayers… Your positive attitude and strength is awesome and amazing… You are a total Rockstar Erin! I LOVE following you on IG with all the daily adventures with your little cuties and now I will defnitely follow your blog xo… And I totally agree… enjoy any and all medical perks 😉
    Love, Tobey XOXO

  • Joseph Gray

    Keep on fighting Erin!

  • Lynn

    Kick butt today! You are awesome!

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