so a little birdy told me that keeping track and journaling this “journey” is therapeutic, a good way to keep friends & concerned family involved & is something to look back on when you need reminding that you’re a total and complete bad-ass.
So I shall blog. And inform all you concerned citizens about my progress and mental stability. And hopefully lex keeps it light by continuing to say things like “mommy! You can’t take me to school if you don’t have any hair!”.
I feel totally fine. Minus the (giant) gash in my chest from my mediastinoscopy (aka biopsy that I didn’t realize would result in a scar that rivals my c-section). I went to the gym this week! But I also went to two doctors appointments, got my chemo hair cut, and have my port scheduled to go in tomorrow…
I’m beyond lucky. I mean if you’re going to get stuck with a cancer might as well get a highly treatable kind. Every doctor and nurse I’ve encountered so far has been extrodinary. I mean my doctor barely flinched when I asked if I could be-dazzle my chemo fanny pack (his answer was ultimately no. But I’m sure I can win this be-dazzle fight).
I start chemo this Monday! I march my butt to the hospital and get 5 whole inpatient days where I hopefully get to sleep in past 5am (we have an alarm clock shaped like a 2 year old that goes off at 5am every morning), and get to eat all the JELLO I want (insert jazz hands emoji). My chemo regimen is 5 days on and 16 days off (EPOCH + R). Those 5 days are 24 hours a day of chemo- so after this first round I’ll get to do it from the comfort of my own home and continue to make sure the ladies are perfectly dressed (because priorities).
So. 6 rounds of this puts my end date being in April. APRIL. That’s so soon. That’s still spring! I won’t even have to endure this madness for more than two seasons- and that’s reason to celebrate.
since I have b-cell lymphoma AND it’s a giant mass in the middle of my chest (it’s 9cm long! Beastly thing) we decided it needed a good solid name because “cancer” is zero fun. So the nickname Bertha was born along with the hashtag bonvoyagebertha . I’m also totally throwing it a going away rager when this is all over (plus I’ll probably have some medical marijuana to use up. I plan on enjoying ALL the perks of cancer- despite what my dad says).
So that’s what I’ve got right now. a lot of hope- and a lot of not being able to plan (which is hard. . . because i’m SUCH a planner).